We finally received the psych eval from the doctor who did the examination. It is as we thought it would be, a recommendation to move forward with a stimulator trial for Dennis. We knew he would get the recommendation for this, its just been a long time to get back to this point again. He had his doctor appointment this last week and she was excited that he had finally gotten it done. So as soon as the insurance company gets it and it gets approved we can move to the next step, getting the referral approved for the neurosurgeon.
We are having a really difficult time lately. The doctor said in the evaluation that his depression has gotten far worse and its only going to continue to get worse the more time that goes by. Our car broke down again. Im fighting depression as well. It just seems like every time we turn around we get knocked down. I dont know how more I can handle, much less how much more Dennis can handle. Like the doctor said in the evaluation, he has no enjoyment from life anymore. He is cut off from any kind of social aspect because he cant handle going anywhere and no one, and I mean NO ONE, comes to visit Dennis. Not even his family. Thats sad. Its hard to deal with. Its hard for me to watch him hurt. What's really sad is that my parents who live 1200 miles away seem to love him even more than I do. My mom calls Dennis "her son" and she means it. She cries for him, she talks to him on the phone, she tries to encourage him, listens to him, she cares such a great deal for him. Im thankful that Dennis and her have a good relationship and they love each other as a mother and son. Well, its almost 9:30 at night, its starting to snow and I have to drive to where my car is broke down at and try to charge it up and wait for his dad to get there, somewhere around 10:00. Wish me luck.
Sorry for going on the way I have, I have no friends except Zach and Dennis and no one to talk to or do things with so I got carried away. I dont even have any followers on this blog, so I guess it doesnt matter if I rant or not lol I hope everyone has a safe uneventful night.
Monday, November 12, 2012
Sunday, November 4, 2012
Short days
With the time changing and darkness falling upon us an hour sooner, we spend much more time inside the house than out. Good thing we have an Xbox. We have a good working heater now. Its so nice to know youre going to be warm and cozy. Last year was a nightmare. Up and down turning the heater back on. Cold weather always makes Dennis hurt worse. I wish people could feel his pain if only for an hour so they could see what its like to be him.
He has a doctor appointment Tuesday. Im hoping that Dennis will have an appointment soon for the neurosurgeon. They dont want to give Dennis any more medications and dont want to up his dosage but its just not controlling the pain well at all and he has had more bad days than good as of late. Some nights he cant sleep at all, some nights he sleeps but not well. Its rare for him to get into rem sleep which Im sure he isnt achieving anymore and if he is its only on occasion. I wish I could do something to help him. Well I guess I do, but I mean to really help him. Its frustrating to me. It also doesnt help when no one is willing to come visit him. I can get him into the main house when he is feeling well enough to but thats once every couple of weeks. His family doesnt come see him, he doesnt really have any friends. He is really isolated from everyone. I know that people dont like to be around something they dont understand, especially when someone has a disability. But I would think that people around here, at least his family, would make the effort. His children seem to stay away as much as possible too. Its heartbreaking. Its the reason I stopped going to church. Anyway... Ill update after his doctor appointment on Tuesday. Be safe going to the polls!
He has a doctor appointment Tuesday. Im hoping that Dennis will have an appointment soon for the neurosurgeon. They dont want to give Dennis any more medications and dont want to up his dosage but its just not controlling the pain well at all and he has had more bad days than good as of late. Some nights he cant sleep at all, some nights he sleeps but not well. Its rare for him to get into rem sleep which Im sure he isnt achieving anymore and if he is its only on occasion. I wish I could do something to help him. Well I guess I do, but I mean to really help him. Its frustrating to me. It also doesnt help when no one is willing to come visit him. I can get him into the main house when he is feeling well enough to but thats once every couple of weeks. His family doesnt come see him, he doesnt really have any friends. He is really isolated from everyone. I know that people dont like to be around something they dont understand, especially when someone has a disability. But I would think that people around here, at least his family, would make the effort. His children seem to stay away as much as possible too. Its heartbreaking. Its the reason I stopped going to church. Anyway... Ill update after his doctor appointment on Tuesday. Be safe going to the polls!
Thursday, November 1, 2012
A new month
I had not really taken the time to figure out how to add the "Follow me" button to the blog but today I finally sat down and figured it out. So please follow me!
So its a new month. Hopefully this month will also be productive for Dennis. He needs to have testosterone treatments because the medications he has been taking over the last 5 years has really messed up the hormones in his body. We have been trying to get him this approved through the insurance for more than a year. In fact its been nearly 2 years. But as I stated before, work comp is one struggle after another.
But with his Psych evaluation done and out of the way, I can finally work on another hurdle. I'm about at the end of my rope on a psychiatrist for him. He really needs someone to talk to and has been approved for therapy for depression, but no one in Michigan likes Ohio work comp! This makes it more difficult and Im thinking of just trying to find him one that can be paid for somehow out of pocket. Right now money is tight for everyone I know and even tighter for us. Im going to look and see if I cant find or start an RSD/CRPS support group locally. Maybe he would feel better if he could talk to people who understand his pain. Its easy for me to talk to him and say "I'm sorry you are hurting" and I know he appreciates it, but even though I have neuropathy I know its not even close to what he is feeling. If anyone knows of a support group within 30 miles of Breckenridge, let me know. I would really appreciate it and so would Dennis.
So its a new month. Hopefully this month will also be productive for Dennis. He needs to have testosterone treatments because the medications he has been taking over the last 5 years has really messed up the hormones in his body. We have been trying to get him this approved through the insurance for more than a year. In fact its been nearly 2 years. But as I stated before, work comp is one struggle after another.
But with his Psych evaluation done and out of the way, I can finally work on another hurdle. I'm about at the end of my rope on a psychiatrist for him. He really needs someone to talk to and has been approved for therapy for depression, but no one in Michigan likes Ohio work comp! This makes it more difficult and Im thinking of just trying to find him one that can be paid for somehow out of pocket. Right now money is tight for everyone I know and even tighter for us. Im going to look and see if I cant find or start an RSD/CRPS support group locally. Maybe he would feel better if he could talk to people who understand his pain. Its easy for me to talk to him and say "I'm sorry you are hurting" and I know he appreciates it, but even though I have neuropathy I know its not even close to what he is feeling. If anyone knows of a support group within 30 miles of Breckenridge, let me know. I would really appreciate it and so would Dennis.
Subscribe to:
Posts (Atom)